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Caregiver's Tips

The responsibilities of caregiving for a person may seem complex and overwhelming to you at first. Depending on the person's needs, you may provide emotional support; practical assistance, such as help with medical care, financial issues, or insurance issues.

The responsibilities of caregiving for a person with cancer may seem complex and overwhelming to you at first. Depending on the person's needs, you may provide emotional support; practical assistance, such as help with medical care, financial issues, or insurance issues; and serve as the communicator between the patient and the health care team. The following tips are designed to help you become an effective caregiver:

Remember that caregiving is a team effort. A caregiver is a member of an important team. Other members of the team include family members, friends, other volunteers, and the medical team. Each member brings different skills and strengths to the group and is working towards a common goal — providing effective care. If you are the primary or lead caregiver, help each team member to express concerns, opinions, and emotions, and ensure that the person with cancer has a central role in all discussions and decisions, if possible. It is very important for the person with cancer to have a sense of control and a way to be as proactive as possible.

Create a list of tasks. Caregiving, like any responsibility, is made up of individual tasks of varying importance. Make a list of all of your caregiving tasks and use it to decide how to divide the tasks between friends, family, hired professionals, and community organization volunteers.

Be proactive. Being proactive means taking charge and planning as much as possible to prevent crises. This can also help give a person a sense of control and order. Create schedules that identify which relative, friend, or other volunteer is available and when, and for what tasks. Make sure that all of the caregivers involved have some time to be away without feeling guilty or concerned. Long-distance caregiving takes even more planning. Find out more about how to be an effective long-distance caregiver.

Be a problem solver. To be a good problem solver, identify problems, find out what needs to be done, and follow through. Most importantly, do not be afraid to seek guidance and help from others. Look for creative solutions that work for your situation.

Try to stay positive. Sometimes it’s easier said than done, but having a positive attitude can help set the stage for everything you do. We may not have control of what happens to us, but we can change how we react.Turn to members of the caregiving team, relatives, friends, religious or spiritual advisors, and health care professionals to help you cope.

Know yourself. Recognize your own strengths and limitations as a caregiver. This allows you to set boundaries and gives you the confidence to know when to ask for help. Setting limits can be beneficial to both the caregiver and care recipient—your loved one can exercise some independence, while the caregiver gets a needed break. Compassionate caregivers need to recognize when they need a break so they don’t become overwhelmed or burned out. Read more on how caregivers can take care of themselves.

Consider professional and volunteer services. These services include professional home care, home-delivered meals, and help with everyday activities. Some community agencies have volunteers who can help with transportation or advocate for health insurance or other benefits. A local hospital or community social worker is a great source for referrals to programs in your community. Learn more about different caregiving options.

Emotional well-being

Communicate. One of the caregiver's most important jobs is to communicate openly with the person who has cancer. Choose a time that is convenient for the both of you to sit down and talk. Provide assurance that he or she will retain decision-making power and be a central part of all discussions and decisions.Be receptive to the person’s feelings and opinions and allow enough time to fully communicate your feelings.

Accept the limitations of a person who is seriously ill. For example, a person who has undergone chemotherapy may not be able to taste a meal you worked hard to prepare, or a person who is on pain medication may not notice all of the small things you do. Also, be aware that caregiving tasks may change depending on the person’s health issues.

Include the person with cancer in activities that provide meaning or pleasure. Even if the person who is ill is no longer able to actively be part of activities he or she enjoys, look for other ways to encourage involvement. It is important to help a person with cancer stay connected to a world beyond their cancer and to maintain a sense of normalcy.

Medical and physical care

Gather information about the patient’s diagnosis, treatment, and prognosis (the chance of recovery). As a caregiver, learn more about cancer, including the type of cancer the person has been diagnosed with. Many patient advocacy groups are also good resources and can provide information related to specific cancers. Ask the doctor about other reliable resources. You may also want to keep a medical journal, which can include the patient’s medical appointments, test results, medications and dosages, symptoms and side effects, new questions between appointments, and names and numbers for resources. Find out more about managing a patient’s care.

Be an advocate.Take an active role in the patient's medical care. If possible, accompany him or her to all medical appointments. It is helpful to write down questions for the doctor in advance and to write down answers. In addition, give the doctor any new information that helps him or her make informed decisions. Learn more about communicating with the doctor.

Learn how to provide proper physical care. If a person requires physical care, such as bathing, dressing, feeding, using the toilet, and grooming, consider consulting with a health care professional or borrowing/purchasing health care videos, manuals, or books that explain how to perform these tasks. Or, you may want to hire professional help.

Legal and financial issues

Ask about being assigned an insurance case manager. Many insurance companies will assign a representative to help manage insurance concerns for a person with a serious illness. This representative can be a resource for determining which benefits are covered, deciding whether arrangements can be made to access out-of-plan benefits for medically necessary care, finding available home care, or troubleshooting insurance problems.

Determine financial status. Providing care for a person who is seriously ill can be financially challenging. For services that cannot be provided by family members (such as medical, pharmaceutical, or therapeutic services), decisions will have to be made regarding who will perform these services and how they will be paid for. Knowing the financial status of the patient can help determine future health care choices. Some community organizations may be able to provide financial assistance for caregiving-related and treatment issues.

Have legal documents in place. Legal documents called advance directives are an effective, legally binding way to communicate a patient's wishes. More importantly, a health care proxy (a person who can legally make health care decisions) can be designated to speak for the patient at such a time when he or she is unable to do so. Deciding who ought to be the health care proxy is an important decision and needs to be made early on and communicated to the professionals involved in care. Other documents, such as a durable power of attorney for health care and a living will may also be needed.

Last Updated: 07/2019

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